Porphyria Drug List

App v2.2.2 - Data 2023-11-28 - DrugBank v5.1

Drug safety search for people diagnosed with porphyria.

This site is dedicated to people with porphyria. The drug safety information provided here comes from two well-known databases and is meant to help you and your physician decide the risk of taking a particular drug.

Safety Rating

S	Very likely to be safe for prolonged use by individuals with an acute porphyria, based on consistent evidence.
PS	Probably safe for prolonged use by individuals with an acute porphyria, based on evidence that is either inconsistent or insufficient to be conclusive.
PU	Probably unsafe for prolonged use by individuals with an acute porphyria, based on evidence that is either inconsistent or insufficient to be conclusive.
U	Very likely to be unsafe for prolonged use by individuals with an acute porphyria, based on consistent evidence.

Disclaimer

The information in this database contains some degree of uncertainty and is meant to be a guide for health care professionals. The prescription of drugs to a patient with acute porphyria is entirely at the risk of the physician in charge.

The same drug may appear in more than one database, so you may see repeated results and, in some cases, with different safety rating. Please be careful in these cases, the decision to use such a drug or not depends on your level on confidence in the database. If a drug is not listed in any of the databases consider it unsafe.

By using this application you agree that I accept no responsibility for any error, difference of opinion, or any adverse consequences arising from or occasioned by the use of information published on this application.

Online resources

Drug Databases

The drugs in this database were compiled from the following porphyria related drug databases:

American Porphyria Foundation (APF)
NordicDrug Database (NAPOS)

This website merely aggregates their drug databases, as such, I am not responsible for the accuracy of the information provided.

Web Sites

American Porphyria Foundation (APF)
Emergency Room Guidelines (APF)
United Porphyrias Association (UPA)

Compatibility and Installation

This mobile web application has been tested in iOS 6 and on Android 4.2.2; it also works offline. To save it to your device follow these instructions:

iPhone	Using Safari, navigate to porphyriadrugs.com, tap the (box arrow up) icon at the bottom of the screen, then tap Add to Home Screen.
Android	Using Chrome, navigate to porphyriadrugs.com, tap the (3 dots) menu icon in the upper right-hand corner and tap Add to home screen.

About

My name is Nicolas Frias and I have Acute Intermittent Porphyria, two of my three children have AIP and my sister died years ago of complications of an attack because she was given the wrong medication. Since then, I have carried a list of safe and unsafe drugs with me at all times, but now in the era of ubiquitous internet and smartphones, I decided to create this website and application. Although I am not directly affiliated with APF, UPA or NAPOS, I have a good relationship with both APF and UPA.

Attribution

DrugBank: Wishart DS, Feunang YD, Guo AC, Lo EJMarcu A, Grant JR, Sajed T, Johnson D, Li C, Sayeeda Z, Assempour N, Iynkkaran I, Liu Y, Maciejewski A, Gale N, Wilson A, Chin L, Cummings R, Le D, Pon A, Knox C, Wilson M. DrugBank 5.0: a major update to the DrugBank database for 2018. Nucleic Acids Res. 2017 Nov 8. doi: 10.1093/nar/gkx1037.